My story with Autoimmune encephalitis

From the year of  2017 and 2018, I was filled with a world wind of emotions. At the end of 2017  , I got diagnosed with a disease called autoimmune encephalitis, which changed my life completely. All I remember is sitting on my parent’s bed (long story), of which I then had my first grand mal seizure. From changing hospitals twice, to then being admitted the doctors soon realized, I had autoimmune encephalitis.

Autoimmune Encephalitis (Encephalopathy) is a rare disease that can be progressive or relapse-remitting. It is caused when the immune system makes auto-antibodies that are not supposed to be there.  These auto-antibodies (aka antibodies) begin to attack healthy brain cells wrongly identifying those healthy brain cells as foreign.   An autoimmune response is now occurring as the immune system attacks and destroys the brain’s healthy cells.  Your own body’s immune system is attacking your brain, causing inflammation of the brain. ”

“All brain functions can be compromised: emotions, psychosis, memory, cognition, problem solving, speech, movement, seizures, balance, visual processing planning, sensory, hunger, thirst, behaviour and personality traits, often followed by suppressed levels of consciousness and coma may occur.”

https://www.autoimmuneencephalitis.net

I suffer from memory loss, loss of cognitive skills, along with a drastic change in behavioural and personality traits. Meaning my emotions fluctuate, I suffer a lot from anxiety and depression. Sometimes, I have my very low days and sometimes I have my very high days. Sometimes, I remember things sometimes I forget. That’s my life now, however, my phone is my life saver. I save everything  onto it so I don’t forget anything.

Luckily for me all glory to God, he’s blessed me with a good life, I know I’m blessed by God’s grace! Those supporting me have given me incredible joy, strength and stability when times are hard (and trust me times are incredibly hard.)

These are the 4 things I learned while being in the hospital

1. God is GOOD

God never let me down, I continued to pray, my family prayed, my friends prayed for me and God came through. There were patients in there, who had the same condition as me but were  in there for several months. I was  admitted for 5 weeks and was discharged as an  outpatient. God is Good.

My boyfriend at the time ended things, while I was in hospital (having a relaspe.) However, sometimes happy ever afters end and there’s frankly nothing you can do about it. I was heartbroken, I had to deal with being admitted into hospital again,  obviously becoming ill, having to process heartache all while celebrating my 20th birthday. MADNESS. However, relationships end for the better, it may seem like the worse, however, Jeremiah 29:11.

God’s timing is always right.

2. It brings people together

It allowed people to draw close by one another (family/friends,)  as they were worried about me. My mom slept with me day and night at the hospital, family and church family came to visit me- even though it was an hour and 15 minutes away from where they lived.

3. Appreciate

It made me appreciate the smaller and larger things in life. Things I take for gratitude, I no longer want to.

4. Prayer works

I know that prayer works.

When I was in hospital I had seizures and manic episodes. However, I continued to pray and read the bible. I know prayer works because of these 2 reasons:

Patients

There were patients with the same condition, who were in the hospital for several months and the doctors still couldn’t figure out where the source was coming from. Luckily, through prayer, they found my source in my brain and in my ovaries.

God listens

I could have been like those other patients and still been in that hospital. Instead, God listened to my prayers, everybody’s prayers and a miracle happened.

”Do not be afraid. Do not be discouraged, the Lord is with you.”

-Joshua 1:9

Is there anything that has changed your life for the greater good? More will be said about my recovery, as I’m still healing.

Leave your thoughts and comments below.

Keep up to date on my journey using twitter and Instagram 

Until next time,

J.

4 thoughts on “My story with Autoimmune encephalitis

  1. Jodiah this explains alot about how your brain damaged affected you and shows you what people are needed around you, I always remember those at the hospital and the few people I’ve met since the accident shows who really is going to be there when you need them the most it shows who’s real and whose fake! X

    Liked by 1 person

    1. Thank you Ashley, I absolutely agree. My experience having a brain injury, has surrounded me with good influences and amazing support.
      I’m so glad you as well are surrounded by good people. You said it correctly, you definitely realise people’s intentions, however, I aim to forgive and let go x

      Liked by 1 person

  2. Jodi I’m so glad you are honest. People will read this and see how hard things are for you sometimes but also how much you have done. Since ut started.There are people out there what are just starting the journey and hopefully this will give comfort. Keep posting and thank you for sharing xx

    Like

    1. Thank you so much Dawn! I’m glad I am able to make a difference and show my story. I would like to be that honest influence.
      Thank you so much for reading, bless your heart I hope to post more xx

      Like

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